Representation and Hesitancy in Population Health Research: Evidence from a COVID-19 Antibody Study

Working Paper: NBER ID: w30880

Authors: Deniz Dutz; Michael Greenstone; Ali Hortasu; Santiago Lacouture; Magne Mogstad; Azeem M. Shaikh; Alexander Torgovitsky; Winnie Van Dijk

Abstract: We examine why minority and poor households are often underrepresented in studies that require active participation. Using data from a serological study with randomized participation incentives, we find large participation gaps by race and income when incentives are low, but not when incentives are high. We develop a framework for using randomized incentives to disentangle the roles of hesitancy and non-contact in driving the participation gaps, and find that hesitancy is the predominant factor. Hesitancy rates strongly correlate with hospitalization rates and COVID-19 risk, suggesting that individuals facing higher health risks may be underrepresented in studies with low incentives.

Keywords: COVID-19; Antibody Study; Participation Rates; Hesitancy; Randomized Incentives

JEL Codes: C40; C42; C83; I1; I14; I30; O31


Causal Claims Network Graph

Edges that are evidenced by causal inference methods are in orange, and the rest are in light blue.


Causal Claims

CauseEffect
financial compensation (M52)participation rates (J22)
hesitancy (D80)participation gaps (I24)
higher incentives (M52)increased participation (I24)
hesitancy (D80)trust in healthcare (I11)
hesitancy (D80)privacy concerns (K24)
noncontact (Y70)participation gaps (I24)

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